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Bad news from Colostomy

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If you do Facebook there are probably IBS and related pages there. Husband and I learned a lot from the prostate cancer page when he was diagnosed. All is well after radiation.
 
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Rod

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Yes, I had a prostatectomy for that. Very aggressive type but PSA's zero now. I have not had IBS or lactose intolerance but my daughter has just been diagnosed with Coeliac disease so now we are wondering if that may be down to me which could mean a gastrostomy for me as well.
 
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Yes, I had a prostatectomy for that. Very aggressive type but PSA's zero now. I have not had IBS or lactose intolerance but my daughter has just been diagnosed with Coeliac disease so now we are wondering if that may be down to me which could mean a gastrostomy for me as well.

Hi Rod - glad that your surgery went well; but let me clarify 'celiac disease' which may require an upper standard or capsule endoscopy (explained in the link below) but not a gastrostomy (a tube through the abdomen that enters the stomach). Below is a quick summary of the disorder - I use to give my residents two dozen GI lectures, radiology emphasizes, and one was on intestinal malabsorption, which focused predominately on celiac disease - so brief summary below which may help others reading this thread and possibly affected.

Celiac disease (a.k.a. sprue or gluten-enteropathy) is an inherited disorder in which the affected individual has an autoimmune reaction to gluten in the diet (wheat, rye, barley). As a result, the villi of the small intestine become atrophic (see pic) preventing absorption of many important nutrients needed by the body, and resulting in a wide variety of signs and symptoms.

The diagnosis of celiac disease has changed since my early days in medicine. Previously, small intestinal biopsy via upper endoscopy using a long instrument to obtain a biopsy showing the villous atrophy (see pic); these days capsule endoscopy is an easier method. Following the endoscopic diagnosis, a patient is placed on a ‘gluten-free diet’ and after a given period of time, the small intestine is re-biopsied to prove recovery of the villi to normal. Presently, there are also serologic tests and even DNA-testing to evaluate for celiac disease - see link HERE.

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Screen Shot 2020-02-02 at 11.05.53 AM.png
 
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Say Rod, RadDave's last post about celiac disease and gluten reminded me of something about diets. Don't take this as medical advice, but from my own reading as an IBS patient, even though IBS and celiac disease are very different disorders, both can benefit from a gluten-free diet and more specifically a low-FODMAP diet as I mentioned earlier. Now here's something that will blow everyone's minds. I first tried doing a gluten-free diet a few years ago in a bid to control my IBS and wound up getting the most gawdawful headaches that felt similar to caffeine withdrawal, but 10x worse. It turns out gluten withdrawal is a real thing and is what I was experiencing. So be aware of that!
 
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Rod - My husband has had a whole host of intestinal issues - too long to go into - including a colostomy and a reversal. I think you meant to reference a colonoscopy in your original post. Hope so as avoiding a colostomy is highly recommended if it is not necessary! Getting old is tough.

Keep a positive attitude. I will be praying.

Lisa
 
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Thanks Lisa, I guess something had to get me. I’ve been lucky with cancer and physical injuries after a lifetime of activity. Really I am only here at all by the grace of god. I’m thankful for what I have and take one day at a time.

I apologise to everyone for the typo, yes, it should have read colonoscopy not colostomy, let’s hope that was not a prophetic slip.
 
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Wishing you well, Rod. x
 
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A big thank you to everybody for your concern, sympathy an helpful advice.


Sent from my iPhone using Mac-Forums
 
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Rod, haven't been on in a while but real sorry to her about your health issue. Wishing you the best and praying for you too.
 
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Rod

Rod


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Rod, haven't been on in a while but real sorry to her about your health issue. Wishing you the best and praying for you too.
Thanks Kenny, I know you understand how it is. Apparently 60% of men over 40 in the US have a degree of Diverticulosis. Obviously I've had it for a while but of late it has gotten worse symptom wise so now that I know whats going on i can start eliminating or reducing the things that aggravate it. It's a bugger getting old.
 
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Rod, Life can be tough sometimes. It is a challenge as we age, Losing hair on top and growing hair where we didn't expect. But, I had a niece who at 17 had a colostomy. She's been wearing a bag ever since. She's 52 now. As a humanist and an optimist, my mantra has always been "Things could be worse". So many people have worse situations then I. I've been blessed with exceptional looks and humility. I was told by one professor my intellect was second to None. Fred None failed that class. But enough about me. Hope things work out for you.

Pete
 
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Rod

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Thanks Pete, like others I really appreciate all of the supportive comments I have received but I did not get a colostomy. I corrected this a few posts ago. I had a colonoscopy which came back with a diagnosis of advanced diverticulosis. Unfortunately the worst outcome could be a colostomy it is not at that stage yet and may never get that bad. I was a Registered Nurse when I retired, working as a community nurse in the outer suburbs of Melbourne and believe me I cared for a lot of clients with colostomies, ileostomies and urinary catheters so I do sympathise with your niece and wish her well with her obviously courageous attitude in living with that.
I totally agree that things can always get worse, I daily practice an attitude of gratitude for all the good things in my life and leave the rest up to god.
 
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I am late to this post but my story: A few years ago my husband woke me in the middle of the night doubled over in pain. Never a complainer, he said he needed the emergency room. So we went to the ER and after a full body scan they discovered the pain was caused by diverticulitis AND they had also discovered an 8 inch tumor wrapped around his right kidney. Advice, get to the urologist tomorrow. Kidney cancer is a silent killer, usually in stage 4 you learn it when you pee blood. So eventually, he had the kidney removed. Without that diverticulitis sending him to the ER, he would probably not be alive now. Finger of God for sure. It's making you pay more attention to your health (how is that for making lemonade out of lemons). And by the way his cancer was 9/11 related, he was not a first responder but he worked there and was there on a daily basis after it happened. The amount of cancers found years later is incredible.
 
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Rod

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Thanks dufchick, wise words for sure. I was much the same. Had a couple of years passing off persistent stomach problems till it was "convenient" to have the cause checked on. I too had a follow up with a full abdo ultrasound and xray at the advice of my doctor. It did turn up a couple of minor problems, not requiring intervention or action at this time but good to get a baseline for the future. Otherwise a clean bill of health which is good to know in itself.
 

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