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  1. #1
    Bad news from Colostomy
    Rod's Avatar
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    Bad news from Colostomy
    Well folks i suppose it's hard to avoid illness at my age and it appears I haven't.

    I managed to escape having a colostomy last year in Australia simply because I ran out of time but this year I had no excuse so finally had the procedure done on the advice of my GP from over a year ago. To cut a long story short I have been experiencing stomach aches and intermittent bouts of the "runs" for a while now and although they usually resolved over a few days but often left me feeling a bit washed out.

    i couldn't pin it down to any specific cause or food it just came and went. I did have other tests over a year back which seemed to rule out anything serious like cancer or infections, or worms or parasites and my liver function tests were all okay so I wasn't too concerned. I had already given up drinking and smoking some years before so i just got on with life and when we returned to Australia earlier this year got the necessary referral.

    The findings were Diverticular Disease with complications and fairly advanced. I should make it clear I havent seen my GP about the results yet but it's pretty depressing stuff that I read online.

    There is a distinction between having diverticulosis and diverticulitis.
    Diverticulosis just means you have little pockets that can become inflamed which is just painful or infected and then it's called diverticulitis.

    It cannot be reversed or cured, high fibre diets are advised (I already have that but could probably increase my intake), it always gets worse, infection can be treated with antibiotics, sometimes hospitalisation may be required or in the worst case scenario, surgical resection of the effected area of the bowel to prevent/treat sepsis and obviously death.

    I find it hard today to be optimistic about this but I need to speak to my GP to get more details.

    So if any other members are sufferers I'd love to hear how you're doing and how things were for you.
    Don't be an April Fool: WORLD BACKUP DAY MARCH 31st

  2. #2
    MBAmtloin
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    My friend was diagnosed with that illness in the late 1990's. He needs a decapitor and used the washroom frequently.
    proper diet will help and a positive attitude also will help you get through this.

    i was going to ask you about Bali, Denpensar and other indonesian places you were, but that was off-topic on these forums.

  3. #3
    Bad news from Colostomy
    RadDave's Avatar
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    Hi Rod - really sorry to hear about your problem w/ colonic diverticular disease - I'm a retired academic GI radiologist (Wake Forest University in Winston Salem, NC) - gave lectures for years to my residents on GI radiology, including diverticular disease; performed numerous barium enemas over 34+ years on patients w/ the disorder and diagnosed its complications, including diverticulitis - so have some experience. Obviously, I don't know the seriousness of your disorder, but specialists in the area are your best choices, which include a medical gastroenterologist (many are sub specialized in certain GI areas) and a GI surgeon - I worked w/ many during my academic career. Hope that you can find the right doctors and good luck! Dave
    If you are helped, increase the reputation of the poster -

  4. #4
    Bad news from Colostomy
    Rod's Avatar
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    Quote Originally Posted by MBAmtloin View Post
    My friend was diagnosed with that illness in the late 1990's. He needs a decapitor and used the washroom frequently.
    proper diet will help and a positive attitude also will help you get through this.

    i was going to ask you about Bali, Denpensar and other indonesian places you were, but that was off-topic on these forums.
    You're welcome to OM me on that topic and thanks for your kind words.


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  5. #5
    Bad news from Colostomy
    Rod's Avatar
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    Quote Originally Posted by Rod View Post
    You're welcome to OM me on that topic and thanks for your kind words.


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    That should have been PM


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    Don't be an April Fool: WORLD BACKUP DAY MARCH 31st

  6. #6
    Bad news from Colostomy
    Rod's Avatar
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    Thanks Dave, good advice and I will take that path.


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    Don't be an April Fool: WORLD BACKUP DAY MARCH 31st

  7. #7
    Bad news from Colostomy

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    My auntie had this problem. She handled it well throughout her life and was very careful with her diet. There were times when it became full blown diverticulitis and it can be very painful and serious. Be sure and get medical attention quickly if that happens.

  8. #8
    Bad news from Colostomy
    RavingMac's Avatar
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    Rod,
    I don’t know anything about the disease, but added you to my prayer list and hope it all works out well for you.
    I've always wanted to be smart, handsome and modest. But, I guess I'll have to be satisfied with two out of three . . .

  9. #9
    Bad news from Colostomy
    MacInWin's Avatar
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    Rod, sorry to hear about the diagnosis. Gut issues are always distressing, because you can feel otherwise pretty good. Ask your doctor lots of questions and take charge of what goes on. It's YOUR body, don't let the doctors use it without you knowing what they are doing and what might be the outcomes, both good and bad.

    Many years ago I was misdiagnosed with a pulled groin muscle that was really an inflamed appendix that ultimately had a pinhole rupture and as a result infected the entire abdomen. Fortunately I didn't lose any organs or pieces of organs, but I learned in the experience to ask questions and not to let the doctors get away with a hand wave. I even debated one about why I should have a procedure that he wanted to do and when he couldn't come up with a good reason I challenged that it was just "intellectual curiosity" and he agreed. Net result? No procedure. And now over 40 years later, it doesn't matter.

    So be positive, inquisitive and take charge. That's my $0.02.

    Will have you in my prayers, keep us up to date.
    Jake

  10. #10
    Bad news from Colostomy
    Rod's Avatar
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    Jake, appendicitis is one of the most frequently undiagnosed or misdiagnosed conditions in the book. There is a very good reflexology method to diagnose appendicitis, very handy to know as a secondary means of diagnosis when unsure because it can be hard to positively identify. There is a spot on the right foot that becomes unbearably painful to pressure when the appendix is inflamed. Anyway I'm glad you survived and thank you for your concern, kind words and advice.


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  11. #11
    Bad news from Colostomy
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    Hi Rod

    While I've no experience of your particular condition I do in handling serious, life threatening illness. Trust your doctors, ask as much or as little as you want about your illness as you want, find treatment that works for you and most importantly remain positive. Yes the prognosis can be very serious and you have to recognise that, but also know that many many people live and cope with this every single day.

    Feel free to PM at any time.

    Nick
    Johann Gambolputty de Von Ausfern....of Ülm

  12. #12
    Bad news from Colostomy
    Rod's Avatar
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    Quote Originally Posted by nickyr View Post
    Hi Rod

    While I've no experience of your particular condition I do in handling serious, life threatening illness. Trust your doctors, ask as much or as little as you want about your illness as you want, find treatment that works for you and most importantly remain positive. Yes the prognosis can be very serious and you have to recognise that, but also know that many many people live and cope with this every single day.

    Feel free to PM at any time.

    Nick
    Thanks Nick, I know you understand, everybody has been so supportive, we really do have a great little community.


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  13. #13
    Bad news from Colostomy
    toMACsh's Avatar
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    Rod, sorry to hear about your diagnosis. Others have given great supportive ideas here, especially about maintaining a positive attitude. I have an Aunt, the last one of her generation in my family, who has a few serious conditions to deal with. She was placed on home hospice and told that she had 6-12 months. Well, 6 months later, she has been taken off home hospice care, and is managing her own medications, with occasional visits from her doctor. I'm convinced that she is doing so well because of her positive outlook. Hang in there!

  14. #14
    Bad news from Colostomy
    Rod's Avatar
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    There sure is a lot to be said for a positive attitude. Thanks for your support and encouragement.��
    Don't be an April Fool: WORLD BACKUP DAY MARCH 31st

  15. #15
    Bad news from Colostomy

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    I don't know if it is allowed to ask--but do you mean from your colonoscopy? That's very different from a colostomy. Sorry if I got too personal.

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