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nickyr
11-21-2014, 05:18 PM
Hi everyone

Depressing thread time I'm afraid.

After suffering with a bad back for around 3 months I finally saw my GP and arranged an x ray. After investigations at hospital it turns out I have multiple myeloma - cancer of my bone marrow.

This as you can imagine has turned out to be devastating for me but more so for my family and friends.

I am looking forward (if that's the right way of putting it) to 12 weeks of chemotherapy, a stem cell transplant and then hopefully a remission. The cancer is treatable only so will return at some stage in the future but I'm not thinking about that.

If you like, you can follow my blog at during the meanwhilst (http://www.duringthemeanwhilst.blogspot.co.uk)

It's not all about doom, gloom and illness but more a sideways glance at life now I've a chance and the time to think about things!

If anyone here has gone or had a relative or friend go through the same illness and would like to share any expreriences please let me know.

Thanks everyone.

Raz0rEdge
11-21-2014, 05:55 PM
Sorry to hear about the diagnosis Nick! Best of luck with the treatment and here's hoping for a full and complete recovery!

chscag
11-21-2014, 07:48 PM
Our prayers are with you for a complete recovery and speedy return to the forums.

chas_m
11-21-2014, 09:49 PM
Thank heavens you're in a sensible country with proper health care and a rational view of the value of stem cell transplants!

My hope is that your chemo will go as smoothly as possible and that you'll be on your way to a full recovery soon. Best wishes to your loved ones and we hope to have you with us for a long time to come. You have a LOT of catching up to do to get to my post count! :)

I hope you'll keep us informed of your progress as you can.

docx
11-22-2014, 06:54 AM
Best of luck mate.
Hope you get well soon.

dtravis7
11-22-2014, 07:19 AM
My prayers go out for you. Hang in there. Thanks for sharing.

lclev
11-22-2014, 10:17 AM
I will pray for a full and safe recovery for you.

Lisa

MacInWin
11-22-2014, 12:19 PM
Praying here, too!

toMACsh
11-22-2014, 12:34 PM
Nick, sorry to hear this news. I'm praying that you will tolerate the chemo well, and get back to normal activities soon after. My only friend or relative that had any kind of cancer was my mother. She had ovarian cancer, which is not very treatable. Well, her father had lung cancer, but I was very young at the time. Hope you can keep you spirits up as you go through the treatment.

sylzam
11-22-2014, 12:40 PM
Nick . Sorry to hear about your situation. Wish you a speedy and complete recovery.

nickyr
11-22-2014, 01:27 PM
Thank you all so much. I'll be on the forum a lot more I think with the extra time on my hands :-)

RadDave
11-22-2014, 02:58 PM
Hi Nick - sorry about your health problem - good luck and hope that all goes well w/ your initial therapy. I'm a retired physician and medicine has advanced tremendously since my internship days on hematology back in the early '70s. Dave :)

nickyr
11-22-2014, 03:08 PM
Thanks Dave.

Yes a few years ago this was a death sentence but not any more. Life expectancy is shortended but advances are so fast these days then who knows what the future holds?

Slydude
11-22-2014, 03:25 PM
Here's hoping treatment goes well. Best wishes for a full recovery.

pigoo3
11-22-2014, 05:27 PM
Sorry to hear about things. Hang in there man…and stay positive!:) From what I've been reading…the chemo + stem cell treatments are the way to go!!!

- Nick

midway40
11-23-2014, 11:50 AM
Hoping and wishing you the best. Stay strong! :)

MYmacROX
11-24-2014, 11:33 AM
So sorry to hear the bad news. My grandmother battled Hodgkins Lymphoma for the last 20 years of her life. She'd get treatment, it'd go away for 4 or 5 years and show up somewhere else. Every time her hair grew back, it came back darker and thicker than before. So there's a silver lining. ;)

Best wishes and will be praying for you and yours.

toMACsh
11-24-2014, 01:56 PM
My grandmother battled Hodgkins Lymphoma for the last 20 years of her life. She'd get treatment, it'd go away for 4 or 5 years and show up somewhere else. Every time her hair grew back, it came back darker and thicker than before. So there's a silver lining. ;)

I've got no hair on top to speak of, but I don't think I'd want to go that route! :o

nickyr
11-24-2014, 03:46 PM
mmmm a new hairline - that I would like :-)

Exodist
11-26-2014, 08:55 PM
Ah man, really hate to hear that. But I am sure you hate it more. I am really hoping that the treatments will help get you back to health. Will be following your blog..

RadDave
11-26-2014, 08:59 PM
mmmm a new hairline - that I would like :-)

Hi again Nick - wife & I had a couple of friends (now, both gals) who had chemotherapy - their hair did return differently (maybe the hair follicle genes were affected - just thinking like a physician) - but one had long red hair which came back brown & curly (at first many thought that it was a wig - ;)) - BUT, hoping the best for you - Dave :)

pm-r
11-26-2014, 09:04 PM
All our best to you nickyr.

nickyr
11-27-2014, 05:18 AM
Ah man, really hate to hear that. But I am sure you hate it more. I am really hoping that the treatments will help get you back to health. Will be following your blog..

cheers Joe

I always enjoy your blog - perhaps with time I can get mine as slick

Pulione
11-28-2014, 01:22 PM
You have our deepest sympathies, we have a very good friend who has completed the rigours of a Stem Cell replacement. Thankfully, he is as healthy as one could ask. He is part of a world wide support group, unfortunately he is not a Mac supporter.
If you would like to contact him, let me know and I will forward your data to him, he is a great person.
You have a good one and take care.

IWT
11-28-2014, 01:31 PM
Hullo Nick

Along with all your other friends on the Forum, I wish you well. And I'm a medic (in the UK, like you).

I wonder if there was a practical side to your question which we could quietly address in a totally non-morbid way.

It would make sense to trust your nearest and dearest with those passwords which would allow them to access your Mac and account should there be a need to do so whilst you are in therapy, incapacitating as we all know that is. You may also be in hospital for a time.

Things like your admin PW, your Apple ID and the like, would make life easier for those required to answer emails and deal with all kinds of personal matters. Very frustrating to be locked out of your Mac at a time when they would deem it insensitive to approach you for these.

Please, please, don't take this the wrong way. I'm suggesting practicality.

My sincere best wishes to you.

Ian

Hedgehog49
11-28-2014, 02:03 PM
Serious best wishes from Prince Edward Island! Google us!
The Rusty Rover

zeech
11-28-2014, 02:03 PM
I don't know you but just happened upon this thread. I'm a cancer survivor too. Wishing you a thorough recovery.

jojoguitar
11-28-2014, 03:36 PM
Hey Nickr, your situation kinda puts a different lens on the world and the all the people and all the toys in it don't it?
What prayers can do they can do better with a can-do attitude. You seem to be one with a PMA.

I have not gone to your blog-yet-I'm actually in the oncologist waiting room here in Maplewood, MN, USA. I'm a 67 year old musician, blues, lived the life since the day I left home at 16. 50 some years?, What ever, never was good at math I better at MAC.

My Cancer is ON MY VOCAL chord, yup, no more singing the blues—so when I sing again I will be singing a different tune. That's what I can do, I can learn from the playback of all the things I said in the past, the way I said them and why I said them.

I'm taking too much space here, but found it, once again, a spiritual thing, finding YOU and your story here in a place I only expected to find 0's and1 stuff.

Nickr, I pray you stay looking toward the light and that light shines the way for you to the healing place, to wholeness and a way to pay forward what you learn on your journey.

lezrtst
11-28-2014, 03:58 PM
Hi Nick,

My mother had this diagnosis in 1980. No one else I knew had it until a few years ago. They gave her 6 mos., she lived 8 yrs. She was able to be at my wedding and play with my two daughters! I'm 63 now, 2 yrs. ago we moved to a new state and a 100 yr. old house. Next door, two wonderful people live in another ancient house.

Chris is the husband; he has Multiple Myeloma. This man and his amazing wife are extraordinary. She married him because (and this was years before he was ill) he has an irrepressible joy for life. He has such exuberance people are drawn to him. The illness hasn't dulled him a bit. He's a favorite.

Nick, find a Chris. Better yet, I'll put you in touch. Let me know. I'll be praying for you and your loved ones. No matter how long any of us has, we're still here for all kinds of important reasons. Celebrate the festival of finding them.

Paula

joca
11-28-2014, 04:19 PM
Hi everyone

Depressing thread time I'm afraid.

After suffering with a bad back for around 3 months I finally saw my GP and arranged an x ray. After investigations at hospital it turns out I have multiple myeloma - cancer of my bone marrow.

This as you can imagine has turned out to be devastating for me but more so for my family and friends.

I am looking forward (if that's the right way of putting it) to 12 weeks of chemotherapy, a stem cell transplant and then hopefully a remission. The cancer is treatable only so will return at some stage in the future but I'm not thinking about that.


If you like, you can follow my blog at during the meanwhilst (http://www.duringthemeanwhilst.blogspot.co.uk)

It's not all about doom, gloom and illness but more a sideways glance at life now I've a chance and the time to think about things!

If anyone here has gone or had a relative or friend go through the same illness and would like to share any expreriences please let me know.

Thanks everyone.

Nick all the very best. This stuff does work. They are the words of my wife's oncologist. She is on her 5th of 6 sessions of chemo after three she had another CT scan and the good news is her lung tumour has shrunk quite dramatically and 5 spots on her liver of which 4 have gone and the 5th has reduced from 17mm to 4mm so Nick we as a family went from fear and trepidation to sheer delight.You seem a very forward looking chap and I believe that has something to do with a successeful treatment the body follows the brain so to speak. Good on you mate and I pray that you soon get good news. Johnnie ;D

exsnapper
11-28-2014, 05:18 PM
Hi Nicky,
I'm a Myeloma Survivor! I was diagnosed in 2006 by my very inquisitve GP. I have done the rounds of chemo, StemCell harvest, transplant and more chemo. I am now in about year 6-7 of remission. I have had a few scares, but normally it's a passing transient that does not require intervention. Is there a way to contact you, off the site? I could talk to you and tell you about our local support group here in Suffolk. ( have a look at www.Cheddar-steam-club.org.uk I'm available via the webmaster link.)

Suzy Jane
11-28-2014, 06:45 PM
Hi Nick, yes indeed you have a rough road ahead...I had an uncle with much the same diagnosis and found in the same way, after months of back pain...his situation was definitely not good, but this was back in the '70's, and I must agree that with all the advances they have made...and with all the progression they continue to make, I think you can believe that you can continue with a positive outlook...we just don't know what advances may be right around the corner, and I will pray for that Nick, and I will pray for your family and friends who obviously feel so helpless...I will pray they will have the strength to give you the continued support you so desperately need...and if I can be of any help as someone to just "talk to", then you know I will...keep us updated mate...you have our support...Suzy in Ireland

hoody
11-28-2014, 07:59 PM
Hi Nick.

Hopes and best wishes for a full and healthy life once you're through the treatment.

vita64
11-28-2014, 09:07 PM
My uncle's granddaughter and grandson were toddlers when he was first diagnosed with multiple myeloma. He retired, did his first round of chemo, went into remission, bought an RV, and traveled all over the U.S. I'm not sure how many rounds of chemo/remission he did, but it must've been several. Eventually the chemo no longer worked and he underwent a bone marrow transplant. That got him a really long remission. He lived to see his grand-babies graduate high school. His disease eventually did claim his life, but he lived for a very long time with it and most of that time was happy, relatively healthy, productive time. Medicine has come a ways since then and will continue to progress as you face your disease. Your prognosis could be even better than his. Best of luck to you.

Edit: I watch a lot of documentaries. Tonight's was a 2004 episode of BBC Horizon about the drug Thalidomide. Though it's probably common knowledge now, in the late '90s it was found to be an effective treatment for multiple myeloma. I wonder if my uncle took it or not. You might want to watch the documentary. https://www.youtube.com/watch?v=7KZ5pjfu_68&spfreload=10

jaked.902
11-28-2014, 10:29 PM
I don't read this forum much but this topic caught my eye. I have a cousin in Toronto (Canada) who recently went through treatment for MM. He emailed us regularly during the treatment. He reacted relatively well to the treatments all told, and has been in remission for half a year now. Based on the info provided by him, you're lucky to have been diagnosed in time to treat it, if at all (apparently it's a rare ailment, and difficult to diagnose). One thing he wrote about was his gratitude for the existence of meal-replacement drinks. Here they're branded Ensure. He was able to keep his weight up during treatment via these drinks. Currently the survival rate is 90% after 3 years, so quite good for a cancer. Here is his first email to us:
Dear cousins,

After a long period of ever worsening back pain, I was diagnosed with multiple myeloma at the end of December. This is a type of blood cancer caused by malignant plasma (white) cells in the bone marrow. It generally occurs only after age 60.

Multiple myeloma has a genetic factor and seems to run in some families, so you and your children may be at increased risk compared to the general population. This risk is low. Total new cases diagnosed annually is 5 in 100,000 people. So a total of 2,300 people/year in Canada, 230/year in Toronto.

There is currently no known cure for multiple myeloma, but there are a lot of treatment programs to control it and extend a patient's life.

I started a cancer treatment program on Jan 13 at Sunnybrook Cancer Centre with two types of chemotherapy and four other drugs. After 5-6 months, I will get a stem cell transplant to replace all the blood cells in my bone marrow, using stem cells extracted from my own blood. This is the best current treatment to provide a significant remission period.

Multiple myeloma can create a number of different problems. In my case, it was absorbing calcium from the bones, making them weak. The calcium also goes into the blood stream and puts stress on the kidneys.

I noticed back pain in October. My usual back remedies weren't working so I went to my GP in November. He put me on a high anti-inflammatory drug. This didn't help (and was actually the wrong thing to do. Myeloma generally puts stress on the kidneys and non-steroidal anti-inflammatory drugs, such as ibuprofen adds to the kidney stress).

My back got worse, went into my hip and I needed a cane to walk. A hip X-ray indicated a possible hip fracture, but the radiologist recommended I go to the ER for a more detailed image. At Sunnybrook hospital, a CAT scan showed bone lesions in the back and pelvic area. I spent 3 days in the hospital as one test led to another, and a week later they confirmed multiple myeloma.

My back continued to worsen, went into my other hip and for about two weeks I couldn't walk at all. Just this week I have seen some improvement and I can walk around the house with a cane. But my bones are very weak and I am at risk of incurring a fracture. So I am getting some radiation therapy to the hip area.

I think my case could have been diagnosed sooner. A year and a half ago I saw my GP about constipation. High blood calcium is a cause and can easily be detected with a blood test. However, GPs generally start with an approach that covers 95% of cases. My doctor recommended more fibre in the diet and Metamucil. I questioned him on this after my diagnosis. He said calcium blood tests are not included in general checkups and are not paid by Ontario medicare. He also noted that when he refers patients to bowel specialists, they generally don't do calcium blood tests either. The fact is that multiple myeloma is difficult to diagnose. My GP is around my age and has only seen four cases in his life. Younger doctors have probably never seen a case of multiple myeloma.

One lesson learned that may be useful to others is that if you experience bone pain (spine, ribs) insist on a CAT (or MRI) scan. Bone lesions seen on these images were key to getting the correct tests for a diagnosis.

However, myeloma has multiple presentations. One is anemia, rather than bone pain. I don't know what a good diagnostic path is for that case.

I don't have a specific prognosis for my case yet. Published survival rates vary quite a lot. For now, I am going with one of the better results, a survival rate of 90 percent after 3 years.

Overall I am getting excellent medical advice and care and I am pretty positive that I will do well.


He did do well and I expect will as well.

pembrukboy
11-29-2014, 12:35 AM
Admire your positive attitude and, being Welsh, you can hopefully stay that sense. I send best wishes from an Aussie-Taff. Some metaphorical sunshine might help, so it is 'winging its way to you'. :)

Rod Sprague
11-29-2014, 03:37 AM
Dear Nick, my very best wishes for a successful treatment and a rapid recovery.
Look forward to seeing more posts from you during the long otherwise boring hours of treatment and convalescence.:)

nickyr
11-29-2014, 05:06 AM
Wow guys. Just wow.

My family and I are massively overwhelmed by the messages of support and kindness posted here. I'll try to get round to contacting those who have offered a chat when I can, and I am in a routine of treatment - and back at home with some time on my hands!

I deliberated for some time before hitting the post button on this topic, thinking that perhaps a computer forum wasn't necessarily the best place for this. But although I don't post a lot here (and when I do it's generally more questions than answers!!!), I have been a member for around 7 years (I joined the day I bought my first iMac I think) and have a sense of belonging and feeling of friendliness on this forum that I don't experience on others. That's why I decided it was right to post.

Also I felt that sharing problems and experiences with fellow cancer sufferers would be of immense help, not just to me but perhaps to other sufferers too.

Anyway, I'm hoping to get home to my family and my dog this week (been in hospital for 2 weeks now) and home to my iMac which I'm sure is missing me as much as I miss it!

Finally, I amazed myself the other night by being able to transfer a photo from my iMac at hom to my macbook in hospital so I could do my blog.

Thank you everyone for making up what I consider to be the finest forum on the internet :-)

And IWT - it's in hand! I'm writing a simple guide for my wife and daughter.

McBie
11-29-2014, 05:43 AM
Nick,
Sorry to hear that.
My prayers are with you & your family, and I will light a candle this Sunday for a full recovery.

Cheers ... McBie

Willskip
11-29-2014, 05:47 AM
Hi, sorry to hear your news. I don't know if this helps, but I was diagnosed with throat cancer at the beginning of this year. I had 6 weeks of Radiotherapy and Chemotherapy and I must be honest it wasn't easy and I lost three stone. I am now clear of cancer but I also realise it could come back.
The treatment I received at my NHS Hospital here in Carlisle UK could not have been better.
I now am back to full fitness and hope it works out the same for you.
Best wishes,
Bill O'Brien

nickyr
11-29-2014, 05:52 AM
for those that haven't seen this...

needless to say the gallows humour from my closest friends reached new heights!

Rod Sprague
11-29-2014, 08:09 AM
Hi Nick, you look like you're keeping your chin up even if it is with the help of a walking frame. I for one am very glad you shared this on the forum. We are after all a sort of supportive community with a shared interest. I had prostate cancer 5 years ago and thankfully recovered completely thanks to the advances in medical science that allowed a non invasive surgical method to be used. So I have some idea what you may be feeling.
Please feel free to PM me any time and at the risk of repeating myself may you have a hassle free treatment and a speedy recovery.
Cheers,
Rod:)

vita64
11-29-2014, 09:01 AM
I added an edit to my earlier reply up above.

viqueen
11-29-2014, 01:47 PM
Dear Nick - My heart and soul go out to you during this leg of your journey; and, how courageous to share it with us. As you've already perceived, it does bring enlightenment.

Two books that changed my perceptions and helped me survive, and even thrive.... 1. Dark Nights Of The Soul by Thomas Moore ..... 2. Wishes Fulfilled by Wayne Dyer.

I pray the universe shows you how grand it really is. Holding you in prayer - Viqueen

RavingMac
11-29-2014, 06:50 PM
Nick,
Just saw this as have been distracted by the holidays and family at home.

Praying also for you. My son-in-law's father recently got the identical diagnosis, so in a way, reading your post and the replies has been encouraging, since we didn't know what to expect.

Liz_M_
11-30-2014, 12:08 AM
Hi Nick. Sorry to read of your plight. Good luck with the chemo. I was diagnosed with NHL Follicular lymphoma one year ago on 27/11/2013 and had 6 rounds of R-CHOP so I know the journey you are on. All the best and I hope you will keep us up to date with your progress. My best wishes.

cherry_bomb
11-30-2014, 03:46 AM
Hi everyone

Depressing thread time I'm afraid.

After suffering with a bad back for around 3 months I finally saw my GP and arranged an x ray. After investigations at hospital it turns out I have multiple myeloma - cancer of my bone marrow.

This as you can imagine has turned out to be devastating for me but more so for my family and friends.

I am looking forward (if that's the right way of putting it) to 12 weeks of chemotherapy, a stem cell transplant and then hopefully a remission. The cancer is treatable only so will return at some stage in the future but I'm not thinking about that.

If you like, you can follow my blog at during the meanwhilst (http://www.duringthemeanwhilst.blogspot.co.uk)

It's not all about doom, gloom and illness but more a sideways glance at life now I've a chance and the time to think about things!

If anyone here has gone or had a relative or friend go through the same illness and would like to share any expreriences please let me know.

Thanks everyone.

I am so sorry to hear your are ill. This came across in my email yesterday in a mac-forum round up and I made a mental note to log onto the site and wish you well.

My step-father was diagnosed with non-hodgkins lymphoma back in May. We then found out it was stage 4 and had travelled into his bone marrow. He just completed his last round of chemo last week and we are awaiting to hear what his latest blood work is.

Cancer, regardless of how curable or common is terrifying, there is just no way around that. But I have taken a lot away from this experience, as well as those of others around me.

Let me start by saying my step-daddy turned 78 this year. Yep. 78. He works 14 hour days driving a logging truck and has missed virtually NO work, save for the his chemo week (which is once a month, two days of treatment and then he takes the third day, Friday, off to recover). I'm very much aware he is not the norm, BUT he has one thing that anyone can have- a can do attitude. He's the strong silent type and I'm sure he WAS scared, maybe even a bit still. But he faced the problem head on and I believe his outlook on getting well is what made this- dare I say this and risk jinxing us?- a fairly painless experience. His red blood cell count is higher than it's ever been. We also realized he went undiagnosed for 4+ yrs due to the incompetent staff at the cancer center he had been going to. They had terrible turn over and he kept having to start from scratch. His case presented as anemia and most drs chalked it up as such and continuously gave him iron supplements and numerous blood transfusions and iron infusions. Although it took us a very long road to find out what ailed him, and we were terrified once he was diagnosed, it was also a relief to KNOW there was something to be done to make him better.

I hope you can take some comfort knowing a 78 yr old man kicked cancers butt and you can, too. I just know it!

One other inspiration I have had over the years is a young, beautiful woman named Diem Brown who fought ovarian cancer three times in the last 10 years. She did pass away a few weeks ago, but I honestly believe the reason she lived as long as she did is because she WANTED it that badly. Really, the fact that she made it through the first two times is amazing, she was just that sick. I believe a positive attitude can take you so incredibly far. She also started a wonderful foundation www.medgift.com

And last but not least...my mom's bestie, Gayle. She is living with pancreas cancer, diagnosed in 2011. She should have been gone two years ago, but she is the most determined, positive, joyful person I know. Yes, she has bad days...more so now than before, but her good days are enough to make her power through the bad ones, as hard as they may be. She just published a memoir, dealing with her diagnosis while telling a parallel story of her life - think hiking in Switzerland, biking in the mountains, etc. Her story is amazing and her words are so uplifting I believe it can change someone's life. Yes, it is a sad tale, but it does not leave you feeling hopeless...it leaves you feeling hopeful!

Wow, I said a lot more than what I planned to!!! Goodness, I didn't realize I could be so long winded. LOL

In a nut shell...what I am trying to say is that the fight might be difficult, it might feel exhausting and dark, but take comfort in knowing there is a light at the end of the tunnel and surround yourself with your loved ones and let them be there for you. I have faith and I wish you all of the wellness in the world. :)

P.S. Love your photo, I think you look wonderful! Keep smiling.

nickyr
11-30-2014, 05:07 AM
Admire your positive attitude and, being Welsh, you can hopefully stay that sense. I send best wishes from an Aussie-Taff. Some metaphorical sunshine might help, so it is 'winging its way to you'. :)

being Welsh, metaphorical sunshine is often the best we can hope for!!

Slydude
11-30-2014, 12:40 PM
I deliberated for some time before hitting the post button on this topic, thinking that perhaps a computer forum wasn't necessarily the best place for this. But although I don't post a lot here (and when I do it's generally more questions than answers!!!), I have been a member for around 7 years (I joined the day I bought my first iMac I think) and have a sense of belonging and feeling of friendliness on this forum that I don't experience on others. That's why I decided it was right to post.

Also I felt that sharing problems and experiences with fellow cancer sufferers would be of immense help, not just to me but perhaps to other sufferers too.



I can understand your trepidation about posting this. I have been to numerous computer/digital forums over the years. In most cases I've been a visitor not a member. Some of these forums have had a positively nasty vibe going. This one is generally the opposite, The only forum I've run across with a similar vibe was MacOSG which sadly seems defunct now.

Personally I'm glad you thought enough of your fellow members to post your story. Anything we can do to help keep your spirits up let us know.

Perhaps we could start passing you the really gnarly computer problems. That ought to keep you occupied. :D

osxx
11-30-2014, 02:14 PM
I place a lot of faith in modern medicine and prayer hope you have a speedy recovery.

nickyr
11-30-2014, 03:05 PM
Perhaps we could start passing you the really gnarly computer problems. That ought to keep you occupied. :D

er you could try but given the majority of my posts are when I need an answer to a gnarly computer problem myself you might have to wait a while for an answer!!

what UK time does your evening chat start in the UK? I don't sleep well at the moment so may * be awake to listen

* you can guarantee that tonight I will sleep like a baby!!

Slydude
11-30-2014, 03:25 PM
If I looked at the time zone calculator correctly you are 6 hours ahead of me. We generally start at 7:00 p.m. my time so that makes it 1:00 a.m. tomorrow morning your time.

I was just about to post an announcement. I won't be able to make it this week. Had a cold/flu since Friday an I am spending today catching up on some things that need to be wrapped up. I should make it next week though. Hope to see you there.

nickyr
11-30-2014, 03:31 PM
hopefully

dose yourself up with any remedies going and get well soon

Slydude
11-30-2014, 03:51 PM
Thanks. Starting to feel better. Still have the sore throat and intermittent loss of voice though. Should be fine in a day or two.

I too have those little/no sleep nights from time to time though for different reasons. Hang in there.

toMACsh
12-01-2014, 01:54 PM
The only forum I've run across with a similar vibe was MacOSG which sadly seems defunct now.

Try TechSurvivors.net, if you're interested. It was a start up after a corporate forum collapsed. It's been so long ago, I can't remember the name of it. (Maybe NoWonder.com?) Maybe there's a history page...

Slydude
12-01-2014, 11:45 PM
Thanks. I bookmarked it so I can take a look later when I am a bit more awake. My wife has been saying for years that the vibe on most Mac forums is far and away nicer than many of the PC/gaming forums she visits. And she's a gamer. Hasn't used a Mac consistently since the clamshell iBook days.

cherry_bomb
12-02-2014, 11:13 PM
Thanks. Starting to feel better. Still have the sore throat and intermittent loss of voice though. Should be fine in a day or two.

I too have those little/no sleep nights from time to time though for different reasons. Hang in there.

I hate nights like that! Last night was one of those. I dozed off around 1 am and then about an hour later I was WIDE awake. It's even worse when you're sick, glad you are feeling a bit better!

Hope you are hanging in there, Nick, as well and are able to sleep better soon!!

toMACsh
12-03-2014, 01:53 PM
I hate nights like that! Last night was one of those. I dozed off around 1 am and then about an hour later I was WIDE awake.

When that happens to me, I get up. Sit in a dark room for 20-30 minutes until I'm drowsy. Faster than staying in bed < sometimes I'd never get back to sleep that way.

Dewij
12-03-2014, 03:28 PM
Nick,

If I may express an opinion - you were very wise to share your recent sudden health change with us all on the Mac Forum. Judging by the responses, it has had the desired effect. You and your family will need all the support you can muster over the next few weeks and months. I have read your blog, and viewed your photographs. You're obviously a person with a great sense of humour, and a very positive attitude. You also have another important plus, going for you, you live in God's country, the best in the world, although I have resided in Canada for 45 years, I was born 82 years ago, on the isle of Anglesey, only a few hundred miles from Swansea, and the Mumbles. No matter what part of Wales one visits or resides in, it offers beauty at every turn. Be strong, and hang in there Nick, you will beat this demon, we hope you will continue to post, and keep us informed of your progress. 'Dal in Wella' (continue to get well) and 'Hwyl' (cheers) Dewi (Jones)

cwa107
12-03-2014, 04:39 PM
Nick,

If its any consolation, my mother-in-law was diagnosed with Multiple Myeloma around the time my wife was pregnant for my first son. At the time, she wasn't sure if she would live to see him born. I'm happy to report that with excellent care at Johns Hopkins University (including a stem cell transplant) she has been relatively healthy for quite some time now. In fact, my son will be 10 in February and she shows no signs of slowing down.

To be sure, there were some bad times, particularly with the stem cell transplant (severe nausea), but she pulled through and is doing just fine.

I will keep you and your family in my thoughts and prayers.

cwa107
12-03-2014, 04:43 PM
Thank heavens you're in a sensible country with proper health care and a rational view of the value of stem cell transplants!



Stem cell transplants as a treatment for Multiple Myeloma are relatively common place here in the US (I assume the US is the target of your ire here).

The stem cells are essentially harvested from your own body. Your immune system is then essentially zapped and the harvested stem cells are then re-introduced to help build your immunities back up again. It is a long, slow process, but it's an incredibly effective treatment for many with this condition.

nickyr
12-14-2014, 04:16 PM
I'm due an op tomorrow (well, it's scheduled to go ahead at the moment) to fix my broken back so when I have my chemo and stem cell transplant I should be as "good" as new. I use the word good reservedly!!

I'm having 2 rods inserted between my L1 and L5 vertebrae and get a new donor L3 one (or they'll remove the damaged bone and graft on a replacement part (think grinding rusty metal out of your car and welding in new steel!)). This'll all then be plated, pinned and screwed.

Sounds straightforward....

I'll be back on my ward then on Tuesday hopefully guys. If I can pursuade the docs to let me have a pic of their work I'll post it on here with a "beware if squeamish" warning!

See you all on the other side :-)

Slydude
12-14-2014, 04:22 PM
:oGeez. Some people will do anything to avoid the Sunday chats.:)

Seriously, hope all goes well for you tomorrow. Let us know how things go as soon as you feel up to it.

exsnapper
12-14-2014, 05:37 PM
I should say Stick with it. Its too late to back out and anything worth a chance is worth the effort in my humble opinion. This may sound a bad experience, at least they won't be using 'rust-ware', titanium is the best for this job. I saw a guy have his totally broken and twisted spine get 'rodded' and a few months later it was hardly noticeable, the now slight curve as he walked again! I used to be in Medical Research, so nothing phases me anymore. Good luck (as if you need it!) keep your head up and keep taking the pills.

nickyr
12-14-2014, 05:49 PM
I should say Stick with it. Its too late to back out and anything worth a chance is worth the effort in my humble opinion. This may sound a bad experience, at least they won't be using 'rust-ware', titanium is the best for this job. I saw a guy have his totally broken and twisted spine get 'rodded' and a few months later it was hardly noticeable, the now slight curve as he walked again! I used to be in Medical Research, so nothing phases me anymore. Good luck (as if you need it!) keep your head up and keep taking the pills.

yes all titanium bits and bolts

so get to lose some weight with the addred bonus of not setting off any airport machines!! This time next year I intend spending a couple of weesk in Florida with my sister at her place there :-) Gotta have plans.

RadDave
12-14-2014, 06:58 PM
yes all titanium bits and bolts

so get to lose some weight with the addred bonus of not setting off any airport machines!! This time next year I intend spending a couple of weesk in Florida with my sister at her place there :-) Gotta have plans.

Hi Nick - all the best of luck w/ the surgery! :) And a FL trip sounds nice too - wife & I go about every year in the spring, usually alternating the coasts. Dave

Rod Sprague
12-14-2014, 11:44 PM
My sincere best wishes for your journey. Look forward to hearing from you in your recovery.
Cheers,
Rod;D

nickyr
12-16-2014, 01:11 PM
well, I survived!

back is a bit sore but that's to be expected and it's another step on the road to my recovery :-)

I just want to be in a hospital nearer home for Christmas now - PLEEEEEEEEASE!!

Sylvester, I promise to make one of your Sunday chats in the New Year! Who knows, when I'm in Florida next October I might even join in.

chas_m
12-17-2014, 05:12 AM
Glad to hear.

I have a rod and ball in my arm from when I destroyed my elbow landing on it in a fall. When I was a skinny whiff of a lad it would sometimes set off the metal detectors, but I've bulked up a bit since then. :)

RavingMac
12-17-2014, 09:48 PM
Nick,
Glad things went well. Definitely keeping you in my prayer list. Though, to be honest, I'll pass on the pics of the operation. ;P

Slydude
12-17-2014, 11:56 PM
@nickyr Glad to hear things are going reasonably well right now. Sounds like you are keeping a good sense of humor.

We'll be glad to have you any time you fell like joining in. I've been trying to work in a show or two that would be at a more convenient time for our European members. Even If we couldn't do it every weekend.

MacInWin
12-18-2014, 12:03 AM
I'll keep praying for you. Now that I can be more specific (about being closer to home for Christmas) I can sharpen up the prayers!

nickyr
12-23-2014, 08:04 PM
I had to leave my local hospital for a few days to get some back surgery done (I've had 5 vertebrae fused and am now partially constructed from titanium rods, plates and screws) but am thankfully back at my local one for Christmas so family can get here to see me over the holidays.

Thank you for all your messages of support recently - they really are much appreciated and mean a lot to my family and me.

MacInWin
12-23-2014, 11:41 PM
YAY! I know you wanted that very much! Merry Christmas to you and your family!

RadDave
12-24-2014, 01:56 AM
.......
Thank you for all your messages of support recently - they really are much appreciated and mean a lot to my family and me.

Hi Nick - hope that you have a pleasant holiday season w/ family and friends - Dave :)

Exodist
12-24-2014, 06:43 AM
I had to leave my local hospital for a few days to get some back surgery done (I've had 5 vertebrae fused and am now partially constructed from titanium rods, plates and screws) but am thankfully back at my local one for Christmas so family can get here to see me over the holidays.

Thank you for all your messages of support recently - they really are much appreciated and mean a lot to my family and me.

Ouch, I know that isn't the best thing to have right before christmas, but never the less glad you are OK and hope you have a great Christmas. On a further note, at least now you get to set the metal detectors off at air ports and look at the TSA and say " I am Wolverine!".. ;D

lclev
12-24-2014, 07:49 PM
Glad to here you are closer to home. As for the TSA - I have two titanium hips and I always set off the scanners. Last time I kept telling them I wanted the really cute TSA guy to pat me down and do the wand thing. Let me just say they have no sense of humor!

Lisa

Exodist
12-25-2014, 12:16 AM
Glad to here you are closer to home. As for the TSA - I have two titanium hips and I always set off the scanners. Last time I kept telling them I wanted the really cute TSA guy to pat me down and do the wand thing. Let me just say they have no sense of humor!

Lisa

LOL :Evil:

Slydude
12-25-2014, 01:12 AM
Glad to here you are closer to home. As for the TSA - I have two titanium hips and I always set off the scanners. Last time I kept telling them I wanted the really cute TSA guy to pat me down and do the wand thing. Let me just say they have no sense of humor!

Lisa

At least your guys know the titanium would set off the scanners. I was flying regularly just before 9/11 and for a few years after. Before the TSA guys took over security I think it was contracted by some security firm. I would have to tell them each time I went through the airport that the titanium in my wheelchair would probably set of the scanner. They didn't know whether it would or not and did mot seem to understand that the scanner was probably a bit narrow for my chair to pass through.

After the TSA took over things were almost as spotty. I was flying every few months through the same airport. If the security person was someone who had seen me before they grabbed the wand right away. New people had to be told all over again.

Demapples
12-25-2014, 06:18 AM
Nick, everything I would have wanted to say has been said by someone else here already, and much better. Wasn't sure I wanted to open this thread, but the positive vibes here make it a delight to read first thing on Christmas morning. Like peeking at a pile of Christmas presents under a stanger's tree. I don't know you, but I'm going to quietly dedicate my Chistmas Day to you and send more positive vibes your way. Best wishes for the New Year.

(My iPad inserted "beat wishes" when I first tried to type "best wishes". Come to think of it, the iPad was right this time!)

nickyr
01-12-2015, 04:49 AM
thanks again everyone for all your kind messages

sit rep: still in hospital getting rehab and physio but hoping to get home the end of this week (after 5 weeks I've become institutionalised!!). the back surgery appears to be a complete success with all nerve pain in my legs now gone so I am (slowly) mobile with the aid of a frame and have a wheelchair waiting at home so I can at least get out and about.

my little white macbook has been a Godsend in here - keeping me in touch with this wonderful, friendly forum and the outside world in general.

my cancer is reducing in line with expectations so it looks like I'm on track for the stem cell work in April and the hopefully remission.

again, thanks for all the kind messages of support - they really have helped.

MacInWin
01-12-2015, 07:29 AM
Fantastic news! We'll keep praying for you here!

nickyr
01-12-2015, 07:55 AM
just had some fantastic news - can go home tomorrow!!!

Rod Sprague
01-12-2015, 08:06 AM
Really good to hear that, I'll bet you can't wait. Keep getting better, the prayers must be working.:)

RadDave
01-12-2015, 10:36 AM
just had some fantastic news - can go home tomorrow!!!

Glad that all is going well and as expected, and sure that you will love coming home! Continued good luck -Dave :)

toMACsh
01-12-2015, 01:58 PM
That's great! I can't help but see the irony in the avatar you've been using since before this diagnosis.

MacInWin
01-12-2015, 02:45 PM
Even better! Nothing like being home!

lclev
01-12-2015, 03:07 PM
Great news! Will keep you in my prayers for a full recovery.

Lisa

hoody
01-12-2015, 07:38 PM
Absolutely brilliant news. Let's hope you have no more trouble.

I have a friend over in England who seems to be hovering around the edges of Myeloma and the uncertainty of not knowing for sure is driving her nuts.

All the best of luck for the future.

nickyr
01-12-2015, 07:55 PM
my thoughts are with your friend hoody - please pass them on

nickyr
01-12-2015, 07:56 PM
That's great! I can't help but see the irony in the avatar you've been using since before this diagnosis.

I know - you couldn't make it up!

Slydude
01-12-2015, 08:08 PM
just had some fantastic news - can go home tomorrow!!!

Excellent. Careful though. It would be my luck I'd start to dance a jig, injure myself, and end up in the same hospital bed.:D

hoody
01-12-2015, 08:51 PM
Nickyr.

Thanks. I will pass it on. Also, I've just watched that you tube vid' and have sent the link to her and her hubby.

nickyr
01-22-2015, 04:07 PM
Well it had to happen.

On Sunday I decided to make my first journey outdoors since coming home. I walked to the door with the aid of my frame with the idea I would then make the small step outside onto the driveway and get myself into the car (don't worry - the passenger seat was my destination). Half way through that move I realised I wasn't going to make it, took a step back and somehow fell backwards right onto the site of my surgery.

I had visons of a trip back to the hospital that carried out my surgery and a row off the surgeon.

A trip to A and E followed where luckily x rays showed that I hadn't damaged any of my surgery or anything else for that matter. Doctor reckoned this was down to me doing nothing to break my fall and that I fell straight back without twisting. This in itself was down to the back brace I have to wear whenever I am out of bed.

We've now had a ramp installed so I can be wheeled in and out of the house.

I got lucky.

pigoo3
01-22-2015, 04:13 PM
Half way through that move I realised I wasn't going to make it, took a step back and somehow fell backwards right onto the site of my surgery.

A trip to A and E followed where luckily x rays showed that I hadn't damaged any of my surgery or anything else for that matter.

Phew…my heart sank there for a second. STOP being such a WILD-MAN!!!;)

- Nick

MacInWin
01-22-2015, 04:25 PM
Ok, that was a warning from God. Stop.

I'd take His advice, personally. :)

Rod Sprague
01-22-2015, 07:34 PM
Just can't hold a good man down. Don't worry it was bound to happen, if you weren't a trier you wouldn't have gotten this far. Take it easy, one thing at a time an keep getting better.
On a completely different here is a pic of one of the things I like about Dark Mode in Yosemite. Always liked shots like this for desktop images but now I can make the menu bar almost invisible as well.
Cheers,
Rod

lclev
01-22-2015, 09:42 PM
Hey you have to take it easy. It sucks I know - two hips replaced, lower back disc issues, but my walker was my best friend. I can imagine you were really worried when it happened. So glad you are alight. I will keep praying for a totally full recovery - barring any more klutzy moments on your part!

Lisa

nancyspeed
01-23-2015, 09:49 AM
Love my little white macbook. I will be so sad when it finally has had enough.

Hope you get well soon. And for gosh's sake don't fall anymore!

What's that saying--Pride Goeth Before the Fall? Maybe in your case it was "during."

nickyr
01-23-2015, 02:51 PM
Thanks again everyone for your kind comments and prayers. I guess after so long staring at 4 walls I just had to get out.

Anyhow, we have now had wheelchair ramp installed so I can get safely in and out of the house so bar the transfer from chair to car and the reverse at our destination I should be safe from any further accidents!

nickyr
01-23-2015, 02:55 PM
Just can't hold a good man down. Don't worry it was bound to happen, if you weren't a trier you wouldn't have gotten this far. Take it easy, one thing at a time an keep getting better.
On a completely different here is a pic of one of the things I like about Dark Mode in Yosemite. Always liked shots like this for desktop images but now I can make the menu bar almost invisible as well.
Cheers,
Rod

now that is a cool look - going to try that desktop out for sure

nickyr
01-23-2015, 03:00 PM
Love my little white macbook. I will be so sad when it finally has had enough.



I love mine too. It's seen me through 7 weeks in hospital and now at home when I get tired and need bed rest. I hope it survives long enough to see me through my stem cell transplant which will see me in isolation (any visitors or staff will be screened for illness) in hospital for 3 weeks.

nickyr
01-23-2015, 03:03 PM
Phew…my heart sank there for a second. STOP being such a WILD-MAN!!!;)

- Nick

Nick

As a former cyclist yourself you'll know it's hard to keep us down and we'll always take risks!! Well, maybe not always any more.

pigoo3
01-23-2015, 05:17 PM
As a former cyclist yourself you'll know it's hard to keep us down and we'll always take risks!! Well, maybe not always any more.

WOW…where the heck did you remember that from??…I haven't mentioned that for quite a while!;) Yes…definitely a risk taker out on the roads (running or cycling).

Wishing you continued speed & success with the recovery!!!:)

- Nick

Exodist
01-26-2015, 10:41 AM
Wishing you continued speed & success with the recovery!!!:)



Indeed..

RadDave
01-26-2015, 12:58 PM
Hi Nick - glad that you survived that initial outing and all is well - continued good luck! Dave :)

nickyr
03-16-2015, 05:56 AM
Just as an update - things haven't gone too well lately.

I was rushed to A&E just over 2 weeks ago with a suspected heart attack. Thankfully this was not the case but they found a large blood clot in one of my lungs ironically probably caused by one of my drugs. All my chemo treatment has been postponed and will not re-start.

Still in hospital but now back on my normal ward and hoping to start a week of physio today. If all goes well I hope to go home at the end of this week.

As soon as the clot is dispersed I shall begin the stem cell harvest and transplant work.

cwa107
03-16-2015, 08:53 AM
Just as an update - things haven't gone too well lately.

I was rushed to A&E just over 2 weeks ago with a suspected heart attack. Thankfully this was not the case but they found a large blood clot in one of my lungs ironically probably caused by one of my drugs. All my chemo treatment has been postponed and will not re-start.

Still in hospital but now back on my normal ward and hoping to start a week of physio today. If all goes well I hope to go home at the end of this week.

As soon as the clot is dispersed I shall begin the stem cell harvest and transplant work.

So sorry to hear that, my friend. Hang in there. Though it will be a long road, I can tell you that the outcome of the stem cell harvesting/reintroduction can be very positive. My mother-in-law is now 10 years post-diagnosis and has not any substantial quality of life issues since she completed the treatment.

lclev
03-16-2015, 05:33 PM
I was wondering how it was going. Sorry to hear you are facing new challenges. I will continue to pray for a complete recovery for you.

Lisa

MacInWin
03-16-2015, 05:41 PM
Continuing to pray for you!

RadDave
03-16-2015, 07:42 PM
Just as an update - things haven't gone too well lately.

I was rushed to A&E just over 2 weeks ago with a suspected heart attack. Thankfully this was not the case but they found a large blood clot in one of my lungs ironically probably caused by one of my drugs. All my chemo treatment has been postponed and will not re-start..................

Hi Nick - boy, sorry about the set-back! Hope all gets back on course as quickly as possible! Good luck - Dave :)

RavingMac
03-16-2015, 09:34 PM
Am praying for you as well.

harryb2448
03-16-2015, 09:47 PM
Also me Nick.

chas_m
03-17-2015, 02:41 AM
Wow! Sorry to hear this, I am keeping my fingers crossed (which makes it very difficult to type this, just so you know!) for you! Feel better soon!

Rod Sprague
03-17-2015, 02:54 AM
Me too Nick. Keep your chin up. Best wishes, Rod

pigoo3
03-17-2015, 07:24 AM
Sorry to hear about things. Keep fighting & stay positive!!!:)

nickyr
03-17-2015, 08:49 AM
thank you once again everyone

it seems I keep hitting brick walls all the time at the moment so I've a theory that my stem cell transplant will go hitch free (fingers crossed!)

toMACsh
03-18-2015, 12:55 PM
Look around for some glass curtain walls. Might cut you a bit, but much more forgiving than brick! ;)

nickyr
05-17-2015, 06:27 PM
well there is a pin prick of light at the end of the tunnel.

today I stared some chemo treatment to allow for injections to stimulate stem cell growth. these will then be harvested in a couple of weeks before being transplanted back into my system during mid July. the road to recovery has started. let's hope it's not a dead end!!

hoody
05-17-2015, 07:03 PM
Good luck with the treatment mate. I've got my fingers crossed for you.

RadDave
05-17-2015, 07:12 PM
well there is a pin prick of light at the end of the tunnel.

today I stared some chemo treatment to allow for injections to stimulate stem cell growth. these will then be harvested in a couple of weeks before being transplanted back into my system during mid July. the road to recovery has started. let's hope it's not a dead end!!

Hi Nick - thanks for the update - hope the 'transplant' is a success! :)

Just had a retired elder colleague (about a 10 year difference in our ages) diagnosed w/ a small tumor of the esophagus (squamous cell carcinoma which has a poor prognosis) - he has dealt w/ bladder cancer for a number of years (now under control) and was recently treated for a small lung cancer w/ radiation (probably successfully) - now is about to start a combination of radiation & chemo for his 'newest' cancer - wife & I have been a little despondent - about to have him over for dinner BEFORE his treatment begins - good luck! Dave

lclev
05-17-2015, 09:16 PM
Nick -

I will keep you in my prayers. Thanks for updating us.

Lisa

Slydude
05-17-2015, 09:26 PM
Thanks for keeping us posted. I bet you are more than ready to move on to the next phase of things and take a step forward. Keep in good spirits and know that we are thinking of you.

TattooedMac
05-17-2015, 09:32 PM
Don't know how I missed this 9 page thread, but here I am.

Thoughts are with you mate. Over the last 20yrs, I have worked through a bad back injury and still am. Not trying to take away from what your going through, but at times, I wish I had something like this that was curable (too a extent) as I'm in pain every day of my life, but I'm happy that things could well look up for you.

I recently lost my mum, a week before xmas, last year, to C and I'm struggling with it, but what keeps me going, is knowing that she had a good 24yrs in her from 1st diagnosis. The treatment knocked her around, but in the good times, she was happy and took every day as it was. Just another day.
She had the most positive of attitude, and its my belief that because of that, and the love she had around her, is the reason she had so many good years, while fighting this terrible disease.

My thought will be with you, and I wish for you, good health, happy times and lots of laughter. If you ever need a person to talk to, PM me without thought, because I have seen both my parents suffer from cancer |May they rest in Peace| and I know what you are going through.
Now this thread is bookmarked, I will keep a eye out on your progress . . .

Here to the best of time . . . . Cheers

nickyr
07-01-2015, 11:13 AM
Mate - I've popped on to give a quick update and only now have seen your post. So sorry for your loss - it really is a very cruel disease.

My back problems will not be sorted when my cancer is treated - that'll be a long way off with physio and strength training. My longed for walks to the local waterfalls and coastal areas with my camera are still some way off it seems.

Anyway, to update - looks like I'll be dusting down my MacBook as I go into hospital on Monday for my stem cell transplant. This will take place next Thursday and I'll be in an isolation cubicle for 2 weeks. I can still have visitors but not if they've got any signs of illness, etc.

It all sounds like great fun with a line put in my neck for bloods, etc on Monday, a really high dose of chemo on the Tuesday followed by the insertion of a nasal tube for feeding. The transplant will be on Thursday and then it's 10-14 days of recovery.

Slydude
07-01-2015, 11:22 AM
Good luck with the next few steps of treatment. We'll keep you in our prayers. Let us know how everything turns out.

Even with the ability to have visitors two weeks in an isolation cubicle might be enough to make me want to scream on a regular basis.:Grimmace:

RadDave
07-01-2015, 11:48 AM
Hi Nicky - all the best of luck - we'll be thinking of you! Dave :)

nickyr
07-01-2015, 11:52 AM
cheers guys :-)

toMACsh
07-01-2015, 12:55 PM
It all sounds like great fun with a line put in my neck for bloods, etc on Monday, a really high dose of chemo on the Tuesday followed by the insertion of a nasal tube for feeding. The transplant will be on Thursday and then it's 10-14 days of recovery.

That's July 6-23 for those without quick access to a calendar.

Prayers and best wishes..

lclev
07-01-2015, 03:18 PM
Nicky - Praying for you still.

Lisa

chas_m
07-02-2015, 02:40 AM
Thanks for the update sir, best wishes for a successful transplant.

RavingMac
07-03-2015, 06:25 PM
Looking forward to a good report, and pics down the road from those walks.

nancyspeed
09-01-2015, 09:39 PM
Anyone have an update?

nickyr
09-02-2015, 05:06 AM
Hi everyone.

An update: I had my stem cell transplant on 9 July. It was really easy - just like a blood transfusion. What wasn't easy was the aftermath of it and the huge dose of chemotherapy I had 2 days before the transplant. I was really ill for 3 -4 weeks after the transplant. Been home now for 5 weeks (ish) and have good days and bad days. I have lost my appetite and have bouts of nausea meaning I have lost about 50 pounds in weight along with al my hair!!!

But (and here's the good news) my consultant is happy with my progress and the blood test results so far. I know I'll start feeling better soon and can then start getting to grips with my back which is still very tender following the operation I had back in last December.

Once that is sorted I'm hoping to be able to get out to the US and stay with my sister who has a place in Florida.

Thanks everyone for your kind messages - they really are appreciated.

Exodist
09-02-2015, 09:03 AM
Nick, glad you are starting to feel better. I know at the moment "better" may still be overstating since I am sure there are days you feel like crap, then there are worse days.. But glad that things are improving. Hope things continue to improve as the days and months progress. Hang in there.. Cheers, Joe..

RadDave
09-02-2015, 10:47 AM
Hi Nick - thanks for the update and hope that you are feeling better soon; and a trip to Florida should help too! We visit the state nearly every spring. Dave :)

lclev
09-02-2015, 12:39 PM
Thanks for the update Nick. Will keep praying for a full recovery.

Lisa

toMACsh
09-02-2015, 12:51 PM
Nick, good to hear of the progress you are making. One day (hour?) at a time...

pigoo3
09-02-2015, 12:52 PM
You're doing great buddy (from one "Nick" to another "Nick").;) Thanks for the update!:)

RavingMac
09-02-2015, 01:12 PM
Thanks for the update. Glad things seem to be on the upswing.

harryb2448
09-02-2015, 05:26 PM
You sure have had more than your share mate. In my prayers.

Rod Sprague
09-03-2015, 03:02 AM
Hope you continue to improve Nick. One day at a time huh? I am due to go into hospital next Tuesday for a Septoplasty due to chronic sinus infection. Basically I get a head cold and it just wont go away, effects my ears, my breathing, even my teeth not to mention making me less than the jolly guy.
Here's hoping we all get better quick, I'll bet the back injury gives you the most grief. After 25 years as a registered nurse working in a spinal rehab I can certainly relate personally and professionally.

nickyr
09-03-2015, 04:10 AM
Thanks again everyone.

And good luck with your procedure Rod. One day at a time indeed!

nancyspeed
09-03-2015, 07:01 PM
Glad the transplant went well. I have heard of people doing really bad with the chemo before it. I think of you every now and then for some reason.

cherry_bomb
11-02-2015, 10:16 PM
Thanks again everyone.

And good luck with your procedure Rod. One day at a time indeed!

How are you feeling? Hope you are on the uphill swing. :)

Rod Sprague
11-03-2015, 02:47 AM
I am doing really well now, how about you Nick? My best wishes.:)

harryb2448
11-03-2015, 04:45 PM
You're doing great buddy (from one "Nick" to another "Nick").;) Thanks for the update!:)



Hmmmmmm I wonder which one is 'Old Nick'?

Good news Nicky keep up the good fight!

nickyr
11-04-2015, 07:40 AM
Well I'm still alive!!

Recovery is where it should be according to my oncologist so I'm happy.

About to install a SSD and 8GB of RAM in my white macbook so I must be feeling OK!!!

Rod Sprague
11-04-2015, 08:17 AM
I guess that's a good sign. keep up the good work. May your instal and restore go smoothly.:)

nickyr
11-04-2015, 09:24 AM
well that was easy!!

my 5 year old Macbook is now performing like it never has before!!

chas_m
11-04-2015, 02:28 PM
Yeah, an SSD is truly a life-changer for old Macs.

Glad to hear things are progressing. Keep us "posted." :)

MacInWin
11-04-2015, 02:44 PM
Glad to hear the update on your health. Will keep praying for healing for you.

I put an SSD into my MBP (early 2011, 17") so now I have a 17" MBA! I think you'll be pleased with the performance pickup.

lclev
11-04-2015, 05:49 PM
Glad to hear you are progressing well. Will keep praying for a full and perminent recovery.

I put a 500GB SSD in my 2009 Macbook and discovered a whole new rejuvinated computer. I had to clean and re-apply heat sink grease as she would overheat and shut down. Once I did that, she began running like a "new" old gal with a face lift! :D

Lisa

Slydude
11-04-2015, 08:42 PM
Thanks for the update Nick. Seems like things are going well. Here's hoping things continue to improve for you.

Rod Sprague
11-05-2015, 12:57 AM
I guess that's a good sign. keep up the good work. May your instal and restore go smoothly.:)

nancyspeed
11-14-2015, 08:14 PM
So glad you are on the mend!

nickyr
07-10-2016, 06:35 AM
Hello everyone.

Quick update. Yesterday was the first anniversary of my stem cell transplant. Everything seems fine and my bloods are stable so all is good at the mo.

I did have a worrying few weeks about 2 months ago when my back pain returned to pre surgery levels so I was fearing the worst, but a CT scan showed no new damage or lesions so again all good (just gotta take more painkillers).

So once again thank you to everyone on here who has passed on their good wishes.

Now, to celebrate, should I replace my 3.5 year old iMac.................? :-)

Rod Sprague
07-10-2016, 07:16 AM
Glad to hear you are over that hump. As for the 3.5 yo iMac? All I can say is, if I could I would, and you certainly deserve it.
I'm getting a set of Bose Bluetooth EarPods for my wedding anniversary, no more pesky cables for me.

toMACsh
07-10-2016, 07:30 AM
Terrific that you've passed that milestone! As for the iMac, that's still pretty new in my book. But then, I did hold on to my last Mini for 8 years! ;)

IWT
07-10-2016, 08:12 AM
Fantastic news. Thanks for posting. The iMac....go for it. Spare no expense!

Of course, you don't need it. But you sure do want it:;)

Ian

Slydude
07-10-2016, 10:37 AM
Great news. Keep us posted.

RadDave
07-10-2016, 12:27 PM
Wonderful update! Hope that all continues to go well. BTW, my wife's iMac is pushing 3 1/2 years old, so may be replacing after the new OS is released. Dave :)

chscag
07-10-2016, 12:40 PM
Not sure if we will see a new iMac this year or not. The last update to the iMac series was late 2015 (Oct 2015) so it may not be until next year before we see anything new. MacRumors buyers guide advises not to buy an iMac for now. It's up to you. ;) Glad to hear of your health progress. :)

lclev
07-10-2016, 04:06 PM
So glad you are doing well! As to a new iMac? I never need an excuse to shop! ;D

Lisa

pm-r
07-10-2016, 04:45 PM
Fantastic news. Thanks for posting. The iMac....go for it. Spare no expense!

Of course, you don't need it. But you sure do want it:;)

Ian



+1.




- Patrick
======

nickyr
07-10-2016, 06:03 PM
Thank you once again everyone for your messages - hey really do mean a lot.

Now, to serious matters. The next iMac I buy will likely be the last for a long time so I want to get the exact right specification. One thing I really want is 1TB of SSD storage which I don't think is available at the mo unless I go down the mac pro route. (I may be wrong here!!)

Ian - whereabouts in Wales are you?

ferrarr
07-10-2016, 06:27 PM
The top of the line 27" 5k iMac offers 1TB Flash Storage.

pm-r
07-10-2016, 06:49 PM
A few non-apple SSD choices out there including:
https://eshop.macsales.com/shop/SSD/OWC/lineup

For more, check:
https://www.google.com/search?client=safari&rls=en&q=1TB++SSD&ie=UTF-8&oe=UTF-8





- Patrick
======

lclev
07-10-2016, 09:15 PM
The top of the line model offers a 1TB SSD:

http://www.apple.com/shop/buy-mac/imac?product=MK482LL/A&step=config#

Lisa

RavingMac
07-10-2016, 10:10 PM
Pair this
https://www.amazon.com/Samsung-UN40JU7100-40-Inch-Ultra-Smart/dp/B00TWFHELW/ref=sr_1_5?ie=UTF8&qid=1468202914&sr=8-5&keywords=samsung+ju7100
with the MacPro of your choice.
I've absolutely delighted in using mine as a dedicated 4K monitor

IWT
07-11-2016, 03:39 AM
The top of the line 27" 5k iMac offers 1TB Flash Storage.

I have this and it's fantastic. (see my specs under Avatar).

Ian

Exodist
07-11-2016, 03:40 AM
Thank you once again everyone for your messages - hey really do mean a lot.

Now, to serious matters. The next iMac I buy will likely be the last for a long time so I want to get the exact right specification. One thing I really want is 1TB of SSD storage which I don't think is available at the mo unless I go down the mac pro route. (I may be wrong here!!)

Ian - whereabouts in Wales are you?

Hey Nick,
Just max out the latest 27" iMac if you can. There is no reason it should not last you 5 or 6 years. Honestly it seems like CPU advancements have slowed back down to a turtles pace like they was when I got my first Tandy over 20 years ago. Even my 2012 Mac Mini still feels quiet good using it. This November will be 4 years I have now owned it. The ways things are now with CPU power, one has to wait at least 6 years for the next upgrade to have that noticeable upgrade feeling as we used to just 10 years ago that we had every year or two.

Cheers, Joe

IWT
07-11-2016, 05:09 AM
Ian - whereabouts in Wales are you?

Sorry, I missed the last bit.

I live in Deganwy, North Wales. The Avatar pic (if you can make it out) is taken from Deganwy looking towards Conwy Castle.

Ian

nickyr
07-13-2016, 03:02 PM
Thanks everyone. I'd not looked at the specs of the top of the range iMac before so assumed (wrongly!!) that there was a max SSD of 512 GB across the range.

Anyway I think I'll ride it out until the next upgrade from Apple and get my dream machine then. There's absolutely nothing wrong with my current iMac just that its getting a little slow with PS/LR sometimes. But then I'll use it another time and it flies through everything. Strange!



Ian: North Wales is lovely. My grandfather (who died before I was even born) came from Anglesey (Cemaes) before moving to South Wales in the 1920s to work underground. When he moved here he couldn't speak English.

pigoo3
07-13-2016, 03:06 PM
Anyway I think I'll ride it out until the next upgrade from Apple and get my dream machine then.

Many Apple computer models are in the "Don't Buy" category at the moment (including iMac's). Thus waiting (hopefully only a short time)…and we may see some new models.:)

RavingMac
07-14-2016, 02:39 PM
Thanks everyone. I'd not looked at the specs of the top of the range iMac before so assumed (wrongly!!) that there was a max SSD of 512 GB across the range.

Anyway I think I'll ride it out until the next upgrade from Apple and get my dream machine then. There's absolutely nothing wrong with my current iMac just that its getting a little slow with PS/LR sometimes. But then I'll use it another time and it flies through everything. Strange!



Ian: North Wales is lovely. My grandfather (who died before I was even born) came from Anglesey (Cemaes) before moving to South Wales in the 1920s to work underground. When he moved here he couldn't speak English.

I understand that loading OS X on an external SSD and then booting from it can liven up an older iMac (read an article about it recently). If I can remember where I read it, I'll post the link.

nickyr
07-14-2016, 03:23 PM
Thanks RM.

Is installing PS and LR on the same external SSD doable and if it is would it speed those apps up as well?

MacInWin
07-14-2016, 05:08 PM
Installing to an external SSD has pros and cons. Pro is that the drive will be super fast. Con is that it will be throttled by the interface speeds, whatever those are. For an older Mac with USB2, that's pretty tight. Firewire is better, Thunderbolt is even better, but the internal bus is the fastest. Putting the apps PS/LR on the external will face the same pros/cons as booting from it...throttling by the interface speeds.

EDIT: Forgot to say great news on the health front, too! Anniversaries are always good markers in life, and that is a great one!

RavingMac
07-16-2016, 08:57 AM
Thanks RM.

Is installing PS and LR on the same external SSD doable and if it is would it speed those apps up as well?

Sorry for the delay in responding, had trouble with the password reset.
1) I'm running a 480GB SSD in my 2012 MBP (non-retina version) with PS and LR installed, so shouldn't be an issue
2) Your 2012 iMac has USB 3.0 and Thunderbolt, so external transfer speeds should be decent
3) I've booted and run off an external drive many times, no problems there
4) Still can't find the article I read, so can't personally vouch for the speed impact of running off a external SSD, never really tried that
5) FWIW, OWC has a turnkey upgrade program for your model of iMac if you wanted to swap out your internal drive for an SSD

Hope any of that is helpful/useful

Shilingford
08-16-2016, 07:14 AM
I will pray you for sure. Hope you'll back again with us. lol

Edvard
08-17-2016, 10:11 AM
Good luck! ;D

nickyr
07-12-2017, 02:17 PM
hi everyone

just a quick update: I had the second anniversary of my stem cell transplant this week and while it brought back some bad memories and caused a deal of depression for a few days, thanks to it I am still here - and still breathing! My bloods continue to be good and the myeloma is still dormant which is a relief :-)

Raz0rEdge
07-12-2017, 02:19 PM
Thanks for the update and the good news. Hoping for many more happy anniversaries..

Slydude
07-12-2017, 02:43 PM
Great news all round. When I saw that this thread had a new post I was wondering whether it was an update or someone spamming the forum again. Glad to hear that things are going well for you. Kinda hard to believe it has been two years.

pm-r
07-12-2017, 03:44 PM
+1 ^!!

And an updated nice new avatar seems to have emerged a while or so ago.




- Patrick
======

harryb2448
07-12-2017, 04:02 PM
Keep on moving mate even on bad days. A walk enjoying nature can at times fill the bill.

hoody
07-12-2017, 06:02 PM
Good news. We're so lucky to live in an age where medicine has made such progress. Hope the good news keeps coming.

Rod Sprague
07-12-2017, 07:57 PM
Congratulations on tha anniversary of your recovery. Many more of them.

RadDave
07-12-2017, 08:18 PM
hi everyone

just a quick update: I had the second anniversary of my stem cell transplant this week and while it brought back some bad memories and caused a deal of depression for a few days, thanks to it I am still here - and still breathing! My bloods continue to be good and the myeloma is still dormant which is a relief :-)

Hi Nicky - great news! Hope that all remains stable and in another two years you can give us the same post - good luck! Dave :)

lclev
07-12-2017, 10:57 PM
Nicky - great news. I will continue to pray that you will have many more healthy years to come.

Lisa

pigoo3
07-13-2017, 09:15 AM
Hey there Nickyr. Great to hear from ya...and great to hear things are well. Thanks for posting & update!:)

- Nick

ProTruckDriver
07-13-2017, 10:53 AM
From one Cancer Warrior to another, Congratulations nickyr on your second anniversary and hope you have many more to come. Glad to see that your blood counts are good and thoughts and prayers they stay that way. I've been on the "Wait & Watch Stage" with CLL for the last 5 years. Hopefully I won't need treatment.

nickyr
07-13-2017, 01:03 PM
Thank you everyone once again for your comments. They really do mean a lot and help with my positivity. You good people are the main reason I've been a member here for nearly 10 years!

ProTruckDriver - keep fighting the fight mate. I too hope you never need treatment and can keep the leukaemia at bay naturally. Live, eat and drink as healthily as you possibly can :-)

cwa107
07-13-2017, 03:15 PM
hi everyone

just a quick update: I had the second anniversary of my stem cell transplant this week and while it brought back some bad memories and caused a deal of depression for a few days, thanks to it I am still here - and still breathing! My bloods continue to be good and the myeloma is still dormant which is a relief :-)

So very glad to hear it!

My mother-in-law has not had any recurrence of MM since her stem cell transplant 10 years ago at Johns Hopkins. As far as I'm concerned, it's a miracle. It wasn't an easy process to undergo by any means, but the result has been amazing, all things considered.

MacInWin
07-13-2017, 03:44 PM
Happy "Birthday" nickyr! May you have many more!

toMACsh
07-13-2017, 03:51 PM
What they said ^
Good to know you're still doing well. :)

nickyr
07-16-2017, 11:15 AM
So very glad to hear it!

My mother-in-law has not had any recurrence of MM since her stem cell transplant 10 years ago at Johns Hopkins. As far as I'm concerned, it's a miracle. It wasn't an easy process to undergo by any means, but the result has been amazing, all things considered.

10 years! Wow. If I get anywhere near that I'll be happy.